For anyone who is wondering...

For any one who is wondering, Whitney has a genetic disorder called Pentasomy X. She was 27th world wide diagnosed with it so it is really rare. Basically, boys have an x y chromosome.. girls have x x chromosomes; Whitney has 5 x chromosomes.. she is all girl :) If anyone has questions, feel free to ask... I don't mind at all. A good website is www.pentasomy.com it gives a great explanation.

Finally a new year.

Beginning 2009

End of 2009 Brayden has had a tough year. The doctors believe it started with an allergic reaction to a vaccine in April. By the end of April, my little boy had changed. He was getting up 10-15 times a night for a drink. He became more aggressive and wild. He wouldn't leave our sides and was very nervous. By the time Aug came his body couldn't fight it anymore and he started having seizures. I have never witness anything scarier as a parent. Standing helpless and watching your child. After an ambulance ride and a hospital stay, Brayden is diagnosed as having epilepsy. They usually last only 2 minutes but feel like 3 hours. I've lost track of how many he has had and how often (I'm not sure I can count that high... even with my shoes off) The last few weeks have been pretty rough for him... every day that goes by seizure free is a great blessing and a step in the right direction.

While at my parents he was able to play with all the tractor he could ever imagine.


This past week Brayden was able to start a class called lil' Aggies. It is a pre-preschool. He is going to start preschool in March. A couple days a week for a couple hours. I will miss him.. but will really enjoy the quietness.

Beginning 2009

End of 2009 2009 was a crazy year.. one I never want to repeat. I love sweet precious Whitney, but it took some time to came to terms with her diagnoses. I spent many nights wondering why I have a child with special needs.. wondering what I did wrong. A few months ago, I began to realize the blessing she is in our lives. Since the light finally click in my head, I spend every night thanking the Lord for this joy and sweet spirit that I get hold each day. She can light up any room and melt your heart by just looking your way.Times are not always easy with her.... I get tired of driving to doctor appointments and keeping therapist appointments but how can you resist this face.

This year Whitney has learned so much.

-Whitney learned how to interact with us and loves to play anticipation games

-Whitney has learned to give the biggest smile and giggle when she is being played with

-Whitney turned the BIG 1 (She just a big as her cake) This is her cake that I spent way to long on.
- Whitney learned how to roll in both directions

-Whitney learned how to crawl (and LOVES to be on the move)

-Whitney has learned how to pull herself up to standing position!! -She is learning how to walk along furniture

- She has gained 7 lbs since she was born and grew 9 inches!

She is my child and will fall asleep in the weirdest positions...
I know she looks like she is in pain, but she is sound asleep. She is so flexible.

We had a pretty good Christmas this year. We were just happy to be together as a family :)
Whitney had Christmas morning to herself because Brayden had seizures and was sleeping.

Christmas morning with Whitney..

Christmas morning with Brayden

In between seizures he was able to open one present. He loves Trains. The first thing he said when he woke up after seizure #2 was "Momma, where choo-choo train?"

Christmas afternoon with Brayden (he slept until about 1ish)

(I know he looks out of it, but he had just woke up from his rescue med which is a sedation)

Brayden decided for Christmas night he would put Daddy under all the new stuff from Santa.

We are excited to start the new year and hope we are blessed as much as in 2009!